Big Updates

Sorry I did not update earlier, but I have definitely been busy. On Friday Bailey was extubated again and placed on CPAP. We hope the 3rd time is the charm.

Friday on CPAP
My first time ever holding Bailey!!! She has been very sensitive to light, touch, and sound, but when I held her she did wonderful. She had the best oxygen sats I had ever seen.

More big news is that on Sunday she was taken off the CPAP and put on a nasal cannula. The nurse was so excited to show me that she had put her first shirt on her.



Wyatt continues to maintain and not really go anywhere on the ventilator. We hope to see an improvement soon. It makes my heart break to see him not do as well as Bailey.



I managed to bribe the nurse into letting Tyler into see Wyatt. I told her about it being my birthday on Wednesday, and that all I wanted for my birthday was to have Tyler come in and see him. Tyler did so well. It meant the world to me to see my two boys in the same room together.

Wyatt's 2nd Surgery

Wyatt had a 2nd bowel surgery today. The problem all started when I saw him on Wednesday. I immediately noticed how swollen his stomach was and I had a fit. They were even still feeding him with his stomach swollen. The surgeon was called in, and Wyatt went for test on Thursday, Friday, and Saturday. Surgery was going to be on Sunday then Monday. On Monday we were mad, and the staff were embarrassed by all that had gone on. It was the craziest mess I had ever seen. We finally had surgery today and the news was very good. He had a stricture and bowel obstruction at the site of his ostomy and no bowel had to be removed. I am so glad I had a fit on Wednesday because if they had continued to feed him it would have probably perforated and that would have been very bad. We thank God that everything went so well.

Saturday through Monday were bad days for Bailey. She was having oxygen and heart rate problems. While I was there Sunday night her sats dropped to 35% and she had heart rate decels. Her heart rate then went into the 200s. I told them I would need to sit down because I was getting light headed. It is very hard to watch this go on with your child. It certainly does not help that I am in the medical field, and I know what is happening. Her heart rate was still up the next morning so they discontinued some of her meds. This has seemed to help, and she had a better day today.

Today's weights:
Wyatt 2 pounds 15 ounces
Bailey 2 pounds 3 ounces

Thanks to everyone for their continued prays and please keep them coming.

Bailey

Finally I managed to get some pictures of Bailey.

That is not a happy face. She is mad because they lifted the top of her bed so we could get some pictures.

Another Long Weekend

Thursday and Friday were very hard days and in the preemie world they were some of the many "bad days." Wyatt was having issues keeping his blood pressure up and had to be started on dopamine. He then had problems with his lungs and had to have his ventilator settings increased and his endotracheal tube (tube in the lungs) changed out. Thankfully by the time we got there Saturday morning he was doing better.
Bailey has given us a scare with her belly. She is on "NEC watch." It is the same intestinal issues that Wyatt had surgery for, but her infection has been caught early. She is on antibiotics and we hope this takes care of the problem.
Both babies had a good day on Saturday and Sunday. Wyatt now weighs 2 lb 7 oz, and Bailey weighs 1 lb 15 oz.

I thought I had our camera fixed but unfortunately it is still not focusing. We were unable to take pictures, but the nurses in Birmingham took pictures of Wyatt and emailed them to me. I hope to get some of Bailey soon.

Tyler and Brianne

Before I was put on strict bed rest we managed to go see Toy Story 1and 2. The kids loved it, but it was a little too much time watching kids movies for Lee and I. Tyler and Brianne enjoyed looking at the flowers before we left for the movies. Tyler had his Woody man for the movies.

Mr Steve and Tyler put his bird food that he made at school in the tree.


Who ever heard of a 3 year old wanting to be a power ranger? She could not wait till Tyler got home so they could fight.
Wednesday night we went to a festival for Halloween. The kids loved it and by the end Brianne had it all figured out.


Today's pictures of Wyatt:

Am I Still Sane?

Absolutely not!!! We have transferred to yet another hospital. This time it is Bailey going for a ride. Today she was transferred to Baptist South. They have a ventilator, the oscillator, that East does not have. The Doctor wanted to transfer her today while she was still stable. Both she and Wyatt have pulmonary interstitial emphysema and believe me you don't want to google that one. It is a condition some preemies develop due to immature lungs. The nurse that took her at South said Bailey was loving the oscillator. The nurse said that Bailey is a feisty one. She should have Wyatt one day. He is a very active little man. Bailey just doesn't like people to bother her, and she also does not like light and noises. I pray that she continues to love the oscillator until her lungs have healed enough to come off the ventilator.

Wyatt is "having a good day."(knock on wood) Good days for him seem so few and far between. They have been able to wean his FIO2 and respiratory rate down some.

We are praying for 2 miracles.

Bad Day

Wyatt and Bailey both had a very bad day. I don't know that I can face another day like today. I sure hope some sleep helps my attitude. Please continue to pray for healing for both Wyatt and Baileys lungs.