Monday, December 28, 2009

The Moment I Knew

10/22/09

Lee seemed so proud to bring this picture home to me. I knew before we had the babies that there was a strong chance that we would lose one or both of the babies. The Dr said they had a 74% chance of surviving. We did not even discuss if they survived what was the quality of life. Even knowing this I think I was in such a daze after the babies that I did not "wake" up and see them till this moment. I saw this picture and I was devastated. I knew that the only way they would survive is if God intervened.

Friday, December 25, 2009

Wyatt and Bailey's Christmas Eve (and my present)

On 12/20/9 Wyatt was taken out of the isolate and placed in a big boy bed. It sure was a big bed for such a little man. I saw him in the new bed for the first time on Christmas eve.


The nurse practitioner at Children's came to me and asked how I would feel about him going back down to Baptist South to be with sister. I did not answer because all I could do was cry. She asked how I would feel about him being there for Christmas. Definitely YES! I would not even take a million dollars over having him be back close to home with his sister. The NP at Baptist South said they called her and asked how she would feel about giving someone a Christmas present.

He made it down to Montgomery at around 5:45. I wish I could have gotten a picture of him on the stretcher. All I could see was a little pink face in the middle of this big stretcher.

I can just imagine what he is thinking as he sucks this pacifier. (which he usually doesn't care for) He had just made it down and was a little traumatized. He peed and pooped on the nurse.

His new little baby bed
His sister slept for most of the time he was getting checked in. She did at one point "crawl" over to the side hole and bump her head on it. I put her back, and I told her I was sorry but for now this was the closest we could get them.
Closest they have been since they were 5 days old. A very emotional time for me....

Twas The Night Before Christmas, St. NICU

Twas the night before Christmas, and in each isolette
Little creatures were squirming and getting all set;
Machinery sat by their bedsides with care,
In hopes that good breathing skills soon would be there.

Day shifters were home all snug in their beds,
As visions of overtime danced in their heads;
While preemies on ventilators, and some on CPAP,
Had just settled down for a long winter's nap...

When out in the hall there arose such a clatter,
The residents woke up to see what was the matter.
Away from the sink I flew like a jet
To make sure all was well at my baby's isolette.

Some bilirubin lights with their powerful glow
Gave the lustre of mid-day to babies below,
When, there before my wondering eyes, it would seem,
Was an oversized stroller and a medical team.
With a handful of needles with which they could stick you,
I knew in a moment it must be St. Nicu.

More rapid than eagles his specialists came,
And he whistled, and shouted, and called them by name:
"Now, Nurses! Now, Residents! Now, Neonatologists!
On, Social Workers! On, Respiratory and Occupational Therapists!
From the front of the unit! To the end of the hall!
Now dash away! Dash away! Dash away all!"

Up to each baby's cribside they flew,
With the stroller full of toys, and St. Nicu too.
And then, in a twinkling, they stopped at each bed
And tucked in the babies and got them all fed.

As I looked at my baby, and was turning around,
Down our aisle St. Nicu came with a bound.
He was dressed in red scrubs, and I could instantly tell
That his clothes had an obvious hospital smell;

A bag of stuffed animals was flung on his back,
And he looked like a peddler just opening his pack.
A little red pen he held tight in his teeth,
And a stethoscope encircled his neck like a wreath.

He was chubby and plump, with a few extra pounds,
And I laughed when I saw him there doing his rounds.
A turn of his clipboard and a twist of his head
Soon gave me to know I had nothing to dread;
He spoke few words, but came straight to my side,
And running down his face was a tear he had cried.

And laying his hand on the back of my head,
He gave me a nod, and slowly he said:
"Each night you come here you're aware of the danger,
But your baby is loved by the One in the manger."

Then the medical team gave a thumbs-up and smiled
And St. Nicu placed an animal next to my child.
But I heard him exclaim, as they rolled out of sight,
"Merry Christmas, tiny baby, and have a wonderful night!"

Author Unknown

Wyatt and Bailey Pictures

Wyatt 12/8/9

Bailey 12/9/09
Bailey's first bottle 12/9/09
Wyatt loves someone to hold him. 12/13/09
Wyatt's foot with daddy's hands 12/13/09
My Chunky Monkey 12/13/09

Ssshhhh don't tell Wyatt but we are getting ready to give him his first bottle. 12/20/9
The first bottle did not go so bad. He only got 11 ccs so that does not take very long. There are 30cc in one ounce so as you can see that is very little. 12/20/9
I may not be full but all that eating wore me out. 12/21/9
12/23/9 two different hospitals and two different donors and we ended up with the same shirt!! Wyatt thinks it makes Bailey look like the brother he was begging for. :) Bailey just wanted pink.

Monday, December 21, 2009

A Week Long 7th Birthday Celebration

Tyler turned 7 years old Dec 9th. My baby is growing up way too fast. He decided he would celebrate his birthday all week. Literally. He started off by having cookie cake at the local Mexican Restaurant. He loved having them sing to him.
The next day we went to Roadhouse (the kids call it the peanut place) with Grandma and Mr Steve. He really thought he was something when they stood up and said Yeah Haw for him.

Blurry picture but you get the idea.

He then had a birthday part at the bowling alley.
Sweet, patient Uncle Tim helps Brianne bowl for the first time.
I think Nicholas and Brianne had the most fun bowling.
The cake Tyler has talking about since he saw the movie "Ice Age Dawn of the Dinosaurs."

Please let the next year go slowly. If everyone could have a child as kind and sweet as Tyler they would be lucky people.

Saturday, December 19, 2009

My Princess

I call her my princess, and she corrects me and says she is the king.

Friday, December 18, 2009

Letters to Santa

The kids went ahead on 12/6 and sent their letter to Santa. I was afraid we might get too busy this year so while I was sick and stuck at home we burned the letters.

In in all the craziness I almost forgot that each year we burned our letter so it could go to the North Pole. Tyler reminded us.

When we were done we roasted marshmallows.