January- All in One Post

I keep saying one day I will have more time to post on the blog. It doesn't seem to be in the near future. To catch up I will make one very long post on January.
1/1
Yes, I know the kids never seem to have matching pjs. I packed all of the big kids clothes up as they out grew them, but for some reason none of the matching pj tops and bottoms seemed to make it in the boxes. I refused to waste money on more clothes to sleep in just for vanities sake.

1/6
Bailey has started putting on shoes herself. She does sometimes still bring them to us to put on, but she can do it herself. It really is like they are not twins. She is months behind Wyatt in development. Wyatt went through the shoe phase months ago. I don't miss this stage. When they can't get on the shoe like they want the screaming and crying begins. Yuck!

1/11
They still enjoy the ball pit. It has a hole, and we will either have to find the hole or replace it.

She loves to cover her head.

1/18
I finally got a new camera. It is so much better than the other one. I really regret not having it when the babies were in the NICU.

1/19
He is a cleaning machine.

Poor Tyler!! Bailey gave him a love bite.

1/20
Wyatt gave Bailey a "I don't like you" bite. This is over a week old.

1/23
At our house the adults don't like these balls. Brianne bounces around on them, sits on them, and has Wyatt also doing this. Lee threatens to pop them all the time. I am constantly saying Brianne get off the ball.

Tyler told me he is "holding his deer." Note that Tyler has a handful of Wyatt's hair. Tyler is big into hunting this year. Thankfully no animals have been killed.

I finally after 2 years and 3 months have decorated the twin's room.

My sister in law, Pam, made these beautiful letters for their names. She is so good at doing arts and crafts. I don't have an artistic bone in my body.

1/26
My little fighter

1/27
Brianne and I made a trip down south to Anna Kay's birthday party. She had a dancing party which was right down Brianne's alley.

The Rigby girls:
L to R: Sophie, Brianne, Anna Kay, and Merrille

1/28
Brianne enjoys sleeping in our room while daddy and Tyler go hunting. I don't know how this girl doesn't break her arm falling out of bed at night. She is all over the place.

Medical Updates For December and January

We took Bailey to see the opthamologist in December because I had noticed that she was having trouble seeing (pulling objects close to her face) and that her strabismus had worsened. We were saddened to hear that her eyes had gotten much worse. Her RX for her glasses had doubled. Will it continue to worsen? What happens if her eyes continue to do this? All the doctor will say is that she hopes that it slows down. I pray that God will take care of Bailey's little eyes. The doctor says she doesn't qualify for laser in the future unless they come out with newer technology.

We started the process of finding a new person to work on feeding for both Wyatt and Bailey. This time we are trying a speech therapist. Bailey doesn't mind this therapist. Wyatt gets upset when he sees the building. He vomited, and I was required to get a note stating he was not sick and could continue therapy. I would think that it wouldn't be necessary to get a note since they work with children with sensory issues.

I started the calling early intervention November 28 to try to swap to another early intervention program. We finally got it swapped on January 17. AIDB was quick to cut the services off but mighty slow to ever begin them. Amazing... We received an appointment to see their case worker on Feb 1. I hope this doesn't mean services will not start till March. The people with the state take their time.

We saw the urologist in January, and everything looks fine. He wants to continue to follow us yearly. If Children's decides to swindle another $68 noncovered facility fee from us, we will not go back. It gets expensive when we pay our copay for each child then get a facility fee tacked on for each child. Children's Hospital should be ashamed!!!! I personally don't see why our pediatrician can't follow them, and we could see the urologist if we had a problem.

They both saw the GI doctor the first of January, We are to continue their meds. Neither of them eat table food. Really neither eat much of anything. Boost is how they survive. He says it will take time. Oh please.... I now have to hold my tongue most of the time when feeding is brought up by people. I would probably be considered rude by some of the things I want to say. If you have never been in our shoes you don't have a clue what it is really like. At the end of the month Wyatt's vomiting has gotten out of control. He throws up 4-5 times a day. He has been scheduled for an EGD on February13. Please pray that Wyatt does fine during the procedure, and that whatever they find is a very easy fix. (as in meds)

I hope February brings a month full of good health. I would also love to see some improvement in their eating.

January 21

The day you were due...........
Babies, I am so very sorry for what you each went through. I wish it could have been different.

I love the way you have blossomed. You each have such a unique personality. You are both the strongest little people I know. You have determination and strength that surely helped you fight to survive.