Walt Disney Part 2

March 14
We started the day with a character breakfast at Chef Mickey's. The characters included Mickey Mouse, Minnie Mouse, Donald, Goofy, and Pluto. The kids really enjoyed the food here, and it was a buffet so there was lots to choose from.

After breakfast we went to Magic Kingdom.

Brianne loved meeting each Disney Princess.

That afternoon we headed back to Epcot. We explored "The Seas."

We continued exploring the world showcase. The kids got to see some of Canada's culture up close.

3/15
Tuesday morning we got up early again to head to Magic Kingdom. We have found that if you want to ride anything without a long wait you have to go when it first opens. I guess most people like to sleep in. We would go early and ride all we could before the crowd would come. We would then eat lunch and go back to the hotel for a nap.
When we first got to the park it was very chilly and the kids needed jackets. It certainly did not take it long to warm up.

Brianne loves her a Disney Character.

This year they had a section where you could go dance with some of the characters. The kids got to dance with Stitch and Chip and Dale.

My prissy little girl

Ah... Mulan at Epcot
I think she was the sweetest character we met (not that they were not all nice). She was patient and took time up with each kid. She also happens to be the teacher at the Padawan Training that got Brianne to come back on stage and fight.

For Brianne we went to a princess character dining at Norway. We don't recommend it for the food. If you are hungry go elsewhere. She got to see Cinderella, Belle from Beauty and the Beast, Aurora from Sleeping Beauty, Snow White, and Ariel.

We managed to get Tyler in a picture with Ariel. He was not thrilled.

Some ethnic culture in Epcot

Who could leave Norway without getting a picture with the troll.

Walt Disney World Part 1

On March 12th we set out for Walt Disney World. We waited till we got to Orlando to tell them where we were going. Poor Tyler missed all the signs advertising WDW. Our reservation did not start in WDW till the next day so the first night we just went out to eat and walked around Downtown Disney.Of course Tyler had to go to the Lego store and buy a Lego set.

The first day in the park we went to MGM Studios in the morning and Epcot at night.

MGM Studios
Tyler and Brianne enrolled in Star War's Padawan training.

Tyler fought Darth Vader. This was the highlight of Tyler's trip. They both asked to go back and train again.

Brianne fought Darth Maul. Brianne is not wearing a robe in the picture because when Darth Maul came out she ran crying and had to leave the stage. After everyone had their turn they came to her and asked if she wanted to try. In the picture you can also tell she is trying to lean back away from him. He was a scary looking man.

For lunch we had reservation for a character lunch with Special Agent Oso, Handy Manny, and Little Einstein's June and Leo.

After a short afternoon nap we spent the afternoon at Epcot

The week we were down there was the parade of flowers. It was so neat how they had flowers in the shapes of different characters.

The Best Miracle of All

Name that Rash

Let's play the game "Name that Rash." Bailey has had a rash on her lower legs forever. Originally everyone said she had dry skin but in March when I looked at her legs in the sun I could see that it was a rash. Since March it has gotten so much worse. It spread to her upper legs, arms, and face. She also now has it on the back of her legs. The pediatrician, much to my dismay, does not seemed concerned. The first time I said something he said to put lotion and steroid cream on it. I went back and told him I did not put the steroid cream on it because I did not feel comfortable putting that much steroid cream on her. The steriods are absorbed through the skin. He gave me a RX and said to change her soap to dove. I did not get the RX filled because it was a tube of cream for $135. I believe we need to fix the problem and not mask it with steroid cream. All opinions are welcome. I know what I believe is the problem but would love to hear from some else. It hard to get a good picture of the rash. Click on the picture to enlarge it so you can see the rash better.

Another Life Down

If I were a cat I would now only have 6 of my 9 lives left. The babies are going to be the death of me. To any of you that don't know (that is if anyone is still checking my blog since I have been absent) Bailey was life flighted to Children's Hospital . Another life down for me...
What happened:
On Wednesday April 13 I took both babies in for ear infections and a cold. Bailey was also running a fever. The big kids had brought yet another cold home from school. We went home with antibiotics in hand hoping this would be over quickly. I called the doctor's office back the next day because Bailey's fever was not going down with Tylenol and Motrin. They said fevers of 101-102 were normal till the antibiotics kicked in. I call back again the next day and asked the nurse if she should not be at least a little better by now. She said give it another 12-24 hours. BIG MISTAKE!

At 5 AM on Saturday morning her fever was 103.2. We took her into the doctor's office. They did a chest xray, and they said it looked like she had a little pneumonia. They also did a pulse ox check and the highest oxygen saturation they could get was in the 70's. No one believed it. We got a shot of rocephin and was sent home. I had a pulse ox machine at home so I knew I could check her at home. I had to charge the machine before it would work so we were unable to check her until 6 PM. We were shocked with the number we got. I called the doctor, and I don't think he believed it. She did not look like a child that was in distress. I told him we were going to take her up to the hospital to my office and check it there. It was 63% (normal for her is 96-99%) and when we blew oxygen in her face it went up to 89%. We called the doctor back and he arranged for us to go to Children's. Unfortunately we had to go through the ER first. She spent 7.5 hours in the ER before she was flown to Children's.

She spent 4 days in the specialty care unit. On Sunday the doctors were talking about all kind of things that could be affecting her oxygen and none of it gave me warm fuzzies. Lee started calling me "the runner" because every time something bad was happening I would leave. I guess I deal with stress by running away from it. LOL On Monday she had a virus panel done and the culprit was found. She had the metapneumovirus. It is in the same family as RSV. The doctor came in that evening and said it explained why she was so sick. One doctor said this virus was RSV on speed. So to all the preemie moms there is something worse than RSV. Bailey finally woke up on Tuesday afternoon. She had literally been sleeping since Thursday afternoon and it was good to finally see her awake and playing.

By Wednesday night we were only wearing oxygen at night. On Saturday I talked to one of the nurses and she said she had seen some kids stay on the unit 2 weeks just on oxygen at night. I got upset and requested to talk to the doctor. The only thing Bailey was receiving that was not her norm was oxygen. I told the doctor I wanted to go home with oxygen, She agreed that could happen since I was a respiratory therapist. She said she would have to wait till the weekend was over.

Monday was crazy. They got pulmonary doctors involved, and they started talking about us being there till Friday. I told them I was going home. I might have gotten a little crazy eyed. They finally saw it my way, and we got home after 10 PM that night.

Oh I will one day post pictures from Walt Disney. We also had a late first birthday the weekend before Bailey went into the hospital. I have pictures somewhere. I just need to find my camera......

We are still alive.

This is pure craziness Mom that you have not posted in so long.
Surely all our wonderful friends understand the situation.
We have been crazy busy!! Bailey keeps trying to go on vacation. (I don't blame her)
Wyatt won't keep his clothes on.
I promised myself that I would post at least one time before the big kids got their surpirise so here goes one long post.
2/13/11
How can you tell if a baby is ready to stop using the swing?

No batteries are needed any more because their twin can swing them. We will soon try to phase the swing out. We still use them during nap time. For anyone who is interested they still take two naps a day. The first is around 10:30 for one hour, and the second is around 3:20 to 6:00. This is the schedule we used for the older two when they were little. Brianne still naps from 4:00 to 5:00.
It is so hard to believe how much Brianne has changed during the last year. I can't believe she will be 5 this summer. She loves the color pink and what could be better than a cowgirl wearing pink.

We have been having a lot of acting out with Brianne. Not only has she been peeing in her pants, but she has done stuff like color her bed. She even colored the side and top of the van. Hopefully some time with her during spring break will help.
We had a Valentine's full of love. Tyler finally got his book about Lego Star War's. The little ones got balloons. Bailey only gets to play with them when Wyatt is away.

2/21/11
Poor Brianne no longer has her kitchen to herself. Both Bailey and Wyatt are constantly going over there to pull the dishes out. This kitchen was definitely worth every penny I spent.
Dr Wyatt is here to fix all your ails. He loves to walk around with the stethoscope around his neck. He must remember seeing all the NICU nurses with stethoscopes around their necks.

Another sign that the babies are growing up and we must put something behind us. When they can climb into their own infant car seat it is time to change to a bigger one.

They gang up on you and before you know it one has a plug in their mouth.

2/28/11
We have a dilemma at our house. Wyatt refuses to sleep without his nap nanny. Bailey prefers not being in the nap nanny and we only put her back in it when she was sick and could not breath. We don't even strap Wyatt in his nap nanny anymore. If he falls out he gets back in it and falls back to sleep. He is a picky sleeper. I can say though he loves to sleep in the mornings. We usually wake him between 7:30 and 8:00. Little Miss Priss is an early bird and wants to wake up between 6 and 7. She chatters in her bed till we get her up between 7:30 and 8:00.

Tyler and Wyatt are great buddies. Tyler is so good with him, and they love to wrestle with each other.
Wyatt is into everything. He is definitely my most fearless baby. He climbs on everything and can figure out just how to get to anything. He has been known to take the wipes box over to something just so he can climb up. I turned on the water in the shower the other night to get it warm and I look back and here is what we see:
He loved the water hitting him. We let Bailey try it also, and she loved it. Both are little water babies.

We have still been going to medical appointments. OT is going well. Bailey does not like her at all. Mrs. Terry said that is normal. This is the first time she has shown a dislike of anybody. I am fine with all the crying as long as it is helping. We went to the NICU follow up clinic in Birmingham the first part of February. Wyatt is within normal limits. Bailey is catching up. She is now only 1 month behind her adjusted age. We were worried about her hearing, but it was normal. We discussed the lack of response to her name and her lack of good eye contact. They mentioned autism again and said they would test her in 6 months. I would just like to find out one way or the other so we could get a game plan and all the services she needs. I am worried. What else can I say about that? I have shed many, many tears over Bailey. She better grow up to be a momma's baby. We got their last synagis shot Feb. 21. Now we hold our breath and hope we don't get RSV. While at that visit we came home with what we call the plague. It has spread through our house like wildfire. Bailey got really sick and had to go to the Dr. She had 103+ fevers. She got a shot of antibiotics and meds for nausea. Her ears were so infected it was obviously making her sick on her stomach.

I will post again as soon as I can after the "surprise." Thanks to my mom, dad, and Aunt Brenda for making the surprise possible for the big kids.

Walking

Wyatt can walk for long distances. He will not do that for the camera. I got him to walk a couple of second for this video.