Tuesday, February 8, 2011
Party with the Cabinet
I caught the end of Bailey partying with the cabinet. She spent several minutes dancing and talking to the cabinet. She has become very verbal in the last few days.
Tuesday, February 1, 2011
More and More Medical Appointments
We spend more time seeing medical personnel than we do anything else. At least it feels that way to me sometimes. I am sure Grandaddy and Maw feel that way also since they have to go with me all the time. We still see the vision therapist and physical therapist every other week. They both seem to be pleased with Bailey's progress.
1/11 Maw and I went to Birmingham to see the GI doctor. It was a pretty ride up there because there was still snow on the ground. When we arrived we discovered that they were closed! I was MAD because no one had the sense to call us. It ended up being a God send because they saw us on that Saturday, and Lee was able to go with us. The doctor was pleased with their weight gain and Bailey even went up on the percentile chart (mind you she has not really reached a percentile). I told him that I guess force feeding works. He gave us samples of some high calorie milk products. The one we were going to use was pediasure 1.5, but it is just simply more than we can afford. It would cost us $600 a month. We will stick to the regular pediasure for $300 month. The 1.5 has more calories. Having premature babies is very expensive. The copays at the doctor alone will kill you. Each time we take them to the doctor it is $60.
1/13 Grandaddy and I went back to Birmingham to see the Urologist. It was not a fun visit and as I told the x-ray tech we will not be doing the VCUG every year. It is a good thing the x-ray showed no evidence of reflux of the kidneys because I will not let them catheterize my babies every year. The doctor said that you can't say that the relux of the kidneys is gone based on one x-ray, but we can stop the daily antibiotics. If they start getting infections we will have to go back, but if all is well we go back to see him next year. Praise the Lord one medicine eliminated!!
1/14 I started noticing at the Urologist's office that Wyatt was pulling his ear. I have also had a problem with Brianne wetting her pants. We became concerned that she might have a kidney infection. We ended up taking both to the doctor. Wyatt has another ear infection, and there is nothing wrong with Brianne. I think she is needing extra attention. She told us the other day we needed to give B and W away so we could spend more time with her and Tyler. That broke my heart. They have been through so much and have been so good through it all. She ended up recanting and saying she did not want me to give them away. Hold tight baby girl Daddy and I have something special planned for you in March.
1/18 We went to the pediatricians for their 15 month check up. Bailey weighed 18 pounds 7 ounces and Wyatt weighed 19 pounds 3 ounces. They both have finally reached the percentile chart based on their "actual" age. They are now 0% for height and weight. :) He was pleased with both of them. I expressed my concerns with Bailey still lacking good eye contact. She also does not recognize her name. Of course we did not get any answers.
Drum Roll Please:
1/21 and 1/28 We finally got an appointment with another occupational therapist!!! She is very expensive and does not file our insurance. Insurance will only reimburse us 50% of what she charges so our part will be $3000 for the year. Is it worth it to keep Bailey off the feeding tube? I hope so. She seems to think that Bailey will not need a tube and that she can help her. She said she is more worried about the stress on the parents because they tend to give up before the child. It is very hard on us emotionally, and it is hard on a marriage. It becomes all consuming. We will see her every week. She also said that in the future she may recommend we see a neurologist because of Bailey's history.
1/25 We went to the feeding clinic through the state. There you see a dietitian, RN, OT, social worker, and speech therapist. They recommend she see OT once a week. We need to introduce new foods. (hard to do folks when she wants to eat nothing!) I did not really learn anything new, but I was pleased to learn that the dietitian will have us come in for monthly weight checks. They also set us up to see a neurologist that comes to the clinic. I am pretty sure we are going to cancel it and see if our pedi wants to send us to a doctor in B'ham.
Please remember to keep Bailey in your prayers. Also remember to pray for all the little babies struggling to survive in the NICU and pray for the parents because of the emotional and financial stain they are enduring.
1/11 Maw and I went to Birmingham to see the GI doctor. It was a pretty ride up there because there was still snow on the ground. When we arrived we discovered that they were closed! I was MAD because no one had the sense to call us. It ended up being a God send because they saw us on that Saturday, and Lee was able to go with us. The doctor was pleased with their weight gain and Bailey even went up on the percentile chart (mind you she has not really reached a percentile). I told him that I guess force feeding works. He gave us samples of some high calorie milk products. The one we were going to use was pediasure 1.5, but it is just simply more than we can afford. It would cost us $600 a month. We will stick to the regular pediasure for $300 month. The 1.5 has more calories. Having premature babies is very expensive. The copays at the doctor alone will kill you. Each time we take them to the doctor it is $60.
1/13 Grandaddy and I went back to Birmingham to see the Urologist. It was not a fun visit and as I told the x-ray tech we will not be doing the VCUG every year. It is a good thing the x-ray showed no evidence of reflux of the kidneys because I will not let them catheterize my babies every year. The doctor said that you can't say that the relux of the kidneys is gone based on one x-ray, but we can stop the daily antibiotics. If they start getting infections we will have to go back, but if all is well we go back to see him next year. Praise the Lord one medicine eliminated!!
1/14 I started noticing at the Urologist's office that Wyatt was pulling his ear. I have also had a problem with Brianne wetting her pants. We became concerned that she might have a kidney infection. We ended up taking both to the doctor. Wyatt has another ear infection, and there is nothing wrong with Brianne. I think she is needing extra attention. She told us the other day we needed to give B and W away so we could spend more time with her and Tyler. That broke my heart. They have been through so much and have been so good through it all. She ended up recanting and saying she did not want me to give them away. Hold tight baby girl Daddy and I have something special planned for you in March.
1/18 We went to the pediatricians for their 15 month check up. Bailey weighed 18 pounds 7 ounces and Wyatt weighed 19 pounds 3 ounces. They both have finally reached the percentile chart based on their "actual" age. They are now 0% for height and weight. :) He was pleased with both of them. I expressed my concerns with Bailey still lacking good eye contact. She also does not recognize her name. Of course we did not get any answers.
Drum Roll Please:
1/21 and 1/28 We finally got an appointment with another occupational therapist!!! She is very expensive and does not file our insurance. Insurance will only reimburse us 50% of what she charges so our part will be $3000 for the year. Is it worth it to keep Bailey off the feeding tube? I hope so. She seems to think that Bailey will not need a tube and that she can help her. She said she is more worried about the stress on the parents because they tend to give up before the child. It is very hard on us emotionally, and it is hard on a marriage. It becomes all consuming. We will see her every week. She also said that in the future she may recommend we see a neurologist because of Bailey's history.
1/25 We went to the feeding clinic through the state. There you see a dietitian, RN, OT, social worker, and speech therapist. They recommend she see OT once a week. We need to introduce new foods. (hard to do folks when she wants to eat nothing!) I did not really learn anything new, but I was pleased to learn that the dietitian will have us come in for monthly weight checks. They also set us up to see a neurologist that comes to the clinic. I am pretty sure we are going to cancel it and see if our pedi wants to send us to a doctor in B'ham.
Please remember to keep Bailey in your prayers. Also remember to pray for all the little babies struggling to survive in the NICU and pray for the parents because of the emotional and financial stain they are enduring.
Monday, January 31, 2011
Coasting Along
1/12/11
They have definitely become "double trouble." Wyatt takes everything off the counter tops and then Bailey plays with it and if possible tears it up. It is amazing what Wyatt can reach and get.
1/20/11
Poor Daddy does not have enough hands to hold them all. They like to sit in front of the computer and watch music videos. We have also been busy skyping with Maw and Grandaddy so Wyatt now goes and points to the computer for them. Wyatt now spends a lot of time clapping, pointing at things, dancing to music, and pushing his cars across the floor.
1/28/11
Bailey has gotten very good at standing up. For a while there she was afraid to stand up because she could not figure out how to sit back down. She does not like to fall down so when that happened to her she stopped standing for more than a week. The therapist got her to cruise the ottoman on Thursday. I have not seen her do it again. She loves to take toys away from Wyatt and has improved her skills at snatching the toy away. Wyatt will often crawl away screaming when she takes a toy. He does not give up though because in a few seconds he comes back and snatches it away and crawls away from her. She is slow as a turtle so she can't keep up with him.
Wyatt has been taking 3-4 steps now for about 3 weeks, but the other day I saw him walk from the couch to the door. He could be walking, but I think he prefers crawling because he is so fast. He is getting 2 more teeth so that will make 8. I don't know about Bailey because she won't open up her mouth very wide because she fears someone will put food in her mouth.
They have definitely become "double trouble." Wyatt takes everything off the counter tops and then Bailey plays with it and if possible tears it up. It is amazing what Wyatt can reach and get.
1/20/11Poor Daddy does not have enough hands to hold them all. They like to sit in front of the computer and watch music videos. We have also been busy skyping with Maw and Grandaddy so Wyatt now goes and points to the computer for them. Wyatt now spends a lot of time clapping, pointing at things, dancing to music, and pushing his cars across the floor.
1/28/11Bailey has gotten very good at standing up. For a while there she was afraid to stand up because she could not figure out how to sit back down. She does not like to fall down so when that happened to her she stopped standing for more than a week. The therapist got her to cruise the ottoman on Thursday. I have not seen her do it again. She loves to take toys away from Wyatt and has improved her skills at snatching the toy away. Wyatt will often crawl away screaming when she takes a toy. He does not give up though because in a few seconds he comes back and snatches it away and crawls away from her. She is slow as a turtle so she can't keep up with him.
Wyatt has been taking 3-4 steps now for about 3 weeks, but the other day I saw him walk from the couch to the door. He could be walking, but I think he prefers crawling because he is so fast. He is getting 2 more teeth so that will make 8. I don't know about Bailey because she won't open up her mouth very wide because she fears someone will put food in her mouth.
Friday, January 28, 2011
Maw and Grandaddy Finally Come for Christmas
1/6/11
Wyatt loves hats of any type. Bowls will even do. The funniest is when you see him crawling through the house with clothes on his head. Oh, this cute period will end all too quickly.
Bailey loves to type on the computer keyboard so we gave her one of her own. It just does not seem the same to her so she still wants the "real" one.
1/9/11
Maw and Grandaddy could not come up for Christmas due to getting sick about a week before Christmas. We told them that they would get better quicker by going to the doctor. Brianne prays every night that they will do the right thing when they are sick and go to the doctor. Grandaddy has finally gone to the doctor- one month later.
Bailey loves to see the track spin round and round but.....
Wyatt refuses to share his toy. The best way to stop her fun is to sit on the track.
Try getting all those kids to look at you at one time!
Hehehe He won't let me watch it so I will take it a part.
Wyatt loves hats of any type. Bowls will even do. The funniest is when you see him crawling through the house with clothes on his head. Oh, this cute period will end all too quickly.
Bailey loves to type on the computer keyboard so we gave her one of her own. It just does not seem the same to her so she still wants the "real" one.
1/9/11Maw and Grandaddy could not come up for Christmas due to getting sick about a week before Christmas. We told them that they would get better quicker by going to the doctor. Brianne prays every night that they will do the right thing when they are sick and go to the doctor. Grandaddy has finally gone to the doctor- one month later.
Bailey loves to see the track spin round and round but.....
Wyatt refuses to share his toy. The best way to stop her fun is to sit on the track.
Try getting all those kids to look at you at one time!
Hehehe He won't let me watch it so I will take it a part.
Tuesday, January 18, 2011
Where Do I Start?
We have had a busy few weeks. We have had SO many doctor's appointments. I have so much to say and so little time to post it. I have been unable to download pictures to the internet because some little gremlin lost my cord. I was going to beat him, but he flashed that toothy grin and I turned to mush. I will update later. I hope we have not lost the few readers we had. :)
Tuesday, January 4, 2011
A Normal Thing: Eating
You would think that at this point eating would be a normal everyday thing for Bailey. Who has a baby that does not want to eat? Don't you know that a baby will eat when they are hungry? They won't stave themselves. Oh how I wish this were true and not just something most people say and believe. I don't think that I mentioned Bailey and I made the long trip to B'Ham to see an occuaptional therapist. It was definitely a waste of my time, gas money and $32 copay. She started off talking about feeding tubes and I knew where she was coming from. She did not know Baiely at all and starts the tube feeding thing. This was even one of Bailey's rare eating days. She drank 2 ounces of milk in no time and ate 1/2 bowl of cereal. I finally had to firmly tell the woman that at this time a feeding tube is not an option. She then proceeded to tell me "suggestions" for us to follow and that we did not need to come back. She said we might need her closer to when she is 2. No thank you, I don't need this woman at all. I left there thinking that she needed Bailey to get a tube so she would get paid more and have her for longer.
We are now going to see a feeding team here (Jan. 25) that I did not know about. I am also trying to get an appointment with an OT in town I have heard good things about.
Please let's all pray daily for Bailey to overcome her fear of eating and adversion to liquids and food. Please add her to your Church prayer list. Let's turn it over to God and let him heal her. Tell anyone you know that is a prayer warrior to pray so we can get this behind Bailey.
We are now going to see a feeding team here (Jan. 25) that I did not know about. I am also trying to get an appointment with an OT in town I have heard good things about.
Please let's all pray daily for Bailey to overcome her fear of eating and adversion to liquids and food. Please add her to your Church prayer list. Let's turn it over to God and let him heal her. Tell anyone you know that is a prayer warrior to pray so we can get this behind Bailey.
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